Thursday, June 14, 2007

A letter from the PCT



Andy and I were at medical school together. Andy is a country GP now. He is only recently an ex-rugby player. He is well over six foot tall and has huge hands. He swears like a trooper with a vocabulary that would surprise the DK. He is happily married with two teenagers and like most of us was, until recently, a happy family doc. He is one of the kindest people I know.

He has just sent me an email.

It illustrates better than anything I have seen exactly what this government has done to the medical profession, and to the NHS. Well meaning protocols, written by over-promoted semi-literate fools are bringing the British medical profession to its knees. This is why doctor’s morale is rock bottom. We cannot work in this environment. This is the new world of of clip-boards and protocols, of rules and regulations, of hospital-at-night and health care professionals.

There is no room for doctors.

I toyed with presenting the email cynically, as a “good news from Stalin” announcement, or whatever. Instead, I am merely going to remove the swear words and present it verbatim. Note particularly the illiterate letter from the PCT with its bizarre verbal neologism. NHS protocols are often written like this.

I have no further comment. Make of it what you will.

Hi John,

I am going effing bonkers. As you know, I look after a residential home for people with severe congenital physical and mental handicaps. Some of them, obviously, are female. I do not perform smear tests on them. I know, I know, many handicapped people are sexually active and it is important to give them the same preventative medical care as anyone else. But these young women are not sexually active and, frankly, for most of them their spastic contractures would make penetrative sex of any sort impossible.

I took the decision not to do the smears. The patients are mostly not competent to weigh up the issues themselves in order to give or withhold valid consent. I have thought about this carefully, and I have had long talks with their carers and families before reaching my decision. They have never been sexually active, the chances of any of them developing cervical cancer are negligible and the prospect of inflicting a vaginal examination on them is unthinkable.

Even to attempt the examination on these largely uncomprehending patients would be traumatic and degrading, and anyway it would be impossible to complete a satisfactory vaginal examination because of the flexion deformities.

So, as I say, I decided that these women should not have smears. I documented that decision in the medical records and noted that it had been fully discussed with the families and carers, all of whom were in agreement.

I wrote to the PCT so that they can avoid sending repeated reminders for these women and their carers to fret about.

And that is the end of the matter. Or so I thought.

I have just received a letter from the PCT saying that:

“national guidance now states that women cannot be ceased from cervical screening on account of learning disability, however profound that disability is. The only circumstances in which women can be ceased from screening are when they have sufficient competence to be able to consent to be removed from the programme”

All these women will now receive regular letters instructing them to book smears and if they do not, they will be sent reminders. Each time a letter arrives, the protocols in these institutions dictate that a ‘best interest meeting’ has to be convened – relatives, carers, therapists and the family doctor will all have to provide their views.

The whole process will be repeated at frequent intervals

I am no longer permitted, as the family doctor, as an experienced medical professional, to make a clinical decision, despite the GMC guidance on ‘do no harm’ and ‘make the patient your priority’.

The protocol dictates that the default position is to assault these vulnerable patients unless a vast swathe of people can regularly make the case against.

I give up.




Andy

42 Comments:

Blogger Anaru said...

Bloody hell!

I am working with a GP nurse practitioner at the moment. She is lovely and I enjoy working with her. However, the rules and regulations that she has to perform under do not encourage her to think. She'd lose her license if she did. She operates by the letter to guidelines. She teaches me about them. When I put other points of view to her I can see that she can not afford to take it in. Her eyes glaze over. It would be too disturbing for her

The madness of what all this crap will lead to is so plain so see.

Make sure we reach all the scores DOEMs dictate and forget about the POEMs - what matters to you and I.

if this http://eurheartj.oxfordjournals.org/cgi/reprint/21/20/1635.pdf
is true we are doing more harm than good. Who cares!!

How many of us have encouraged our kids to be part of this madness.

The future for docs and patients does not look good.

Thursday, June 14, 2007 12:23:00 AM  
Anonymous Anonymous said...

And you have a hard enough time getting cancer screening done on your "healthy" patients.

Of course, this is the problem with "evidence-based medicine". You have a roadmap of England to help you find where you're going. Problem is, you're in France. The advantage of a PAP was not likely based on studies of bedridden quadriplegics.

If it's any consolation to your friend, we get plenty of idiots in USA healthcare. Why do they so easily rise to the top?

..........arf

Thursday, June 14, 2007 2:48:00 AM  
Blogger Anaru said...

Why do they so easily rise to the top?

Those that think they know what's best for everyone else tend to apply for these jobs. It was the same when we were students. The rest of us moaned and they got to play their games.

Till recently we could ignore them - no more.

Now their 'guidelines' are being transformed into rules and for the sake of peace and quiet we end up squeezing our round patients into square holes and the other way round.

Do you guys have the equivalent of our health and disability commissioner?

He or she makes opinions behind closed doors with no checks and balances or any rules of evidence. These opinions then get plonked on one's records - opinion becomes fact and they can not be appealed.

I got done for overdosing a patient with 20mgs of valium.

Who dreams up this stuff - control freaks. Nice ones who in times gone would have been smiling condemning priests.

Sorry I am raving

Keep smiling
andrew

John Tom Bell says hi
http://kiwidocblog.blogspot.com/

Thursday, June 14, 2007 3:50:00 AM  
Anonymous Dr. Oz said...

Forget clipboards and protocols doc; the future is laptops and protocols.

You may not realize it, but doctors arrive at decisions based on rules of thumb as well. The problem with the nurse practitioner heuristics is that they do not encompass enough contingencies. In medicine the text book case is rarely the case.

But as protocols get more sophisticated, nurses will be just about as good as doctors.

Look at how well an undedicated program such as Google can offer diagnostics.

Thursday, June 14, 2007 4:20:00 AM  
Blogger Alex said...

I think your doctor friend gave up too easily on this one.
“national guidance. now states that women cannot be ceased from cervical screening on account of learning disability, however profound that disability is. The only circumstances in which women can be ceased from screening are when they have sufficient competence to be able to consent to be removed from the programme”

I would reply stating the reason for this was due to their physical disability not their learning disability, and furthermore that it is 'national guidance' and not a requirement. As the doctor responsible I would request that they not send the reminders because of the above reasons. I would also state that by sending subsequent reminders they would be causing harm and distress for which they would be held responsible.

Hopefully you wouldn't hear from them for a while as ' the harm and distress' is likely to trigger all manner of internal risk assesments, and whilst these people are happy to send out all manner of dictats, they balk at being responsible for anything.

Alex

Thursday, June 14, 2007 4:23:00 AM  
Blogger Roger Thornhill said...

"national guidance now states..."

Guidance. Guidance. Yes, you are right - semi-literate fools. Guidance is not the same as a regulation or a rule.

Your stance and handling show good common sense, sensitivity and professionalism. Unless their "protocols" can improve on that it is not their heads I would be shoving up thier butts.

Thursday, June 14, 2007 8:07:00 AM  
Anonymous Pascal said...

The one thing that bothers me is the "I give up" line.

Easy way out, but if the doctors do not react as a group, they should not be surprised things are getting worse.

Thursday, June 14, 2007 8:38:00 AM  
Anonymous Incandenza said...

"The only circumstances in which women can be ceased from screening are when they have sufficient competence to be able to consent to be removed from the programme”

That cannot be true. Surely the default position for any patient is NO treatment unless they consent to it or (if they lack capacity) the medical team feel it is in their best interests.

Arf - How is this the problem with 'evidence-based medicine'?

Thursday, June 14, 2007 8:40:00 AM  
Anonymous Tim said...

When I read things like this, I don't understand how anyone can remain wedded to the idea of a nationalised health service and its inevitably top down 'service'.

Thursday, June 14, 2007 9:18:00 AM  
Anonymous the a&e charge nurse said...

Incandenza - I believe you are absolutley correct.

Treatment of any kind cannot be imposed without so called valid consent [slightly different from informed consent] - if the patient lacks 'capacity' then a doctor may act in his/her best interest.

I'm less clear if a doctor requires a second opinion in all cases when a patient is deemed to lack capacity - since a certain degree of subjectivity may creep in when deciding how much the patient understands and how well they are able to retain and process information.

Sometimes patients will come to A&E and then refuse treatment after a significant overdose, in these circumstances at least 2 doctors become involved [and one is usually the psychiatrist] to address the capacity issue.

Recently, I have been hearing more and more about treatment by proxy [non-negotiable directives from distant organisations, such as PCTs, etc] - it seems that Dr Crippen may have been right after all.

Thursday, June 14, 2007 9:31:00 AM  
Blogger The Shrink said...

The Mental Capacity Act 2005 is your friend, here. Well it will be when it all comes in to force this Autumn and people become more savvy 'bout it.

Presumably the patients have not appointed a donee with last power of attorney for health and social welfare decisions. So an deputy would need to be appointed to direct health decisions for these incapacitaed adults.

Section 17 (1) (d) of the Mental Capacity Act 2005 states this person needs to then use their powers, ". . . as respects [the patient's] welfare in particular to -
giving or refusing consent to the carrying out or continuation of a treatment by a person providing health care for [the patient];"

Typically adults can't give consent for other adults. The Mental Capacity Act allows an adult to consent for an incapacitated adult (who lacks capacity to make a valid decision on that issue of consent). Thus, as the PCT directs, a statement made my someone with, "sufficient competence to be able to consent to be removed from the programme can indeed proffer such a statement and withdraw them from the programme.

Thursday, June 14, 2007 10:45:00 AM  
Blogger OT student said...

The way the letters are phrased could cause distress - whether the people referred to are 'competent' or not.

I have known people with similar issues (level of spasticity) making it an impossible procedure without (e.g.) IV diazepam/midazolam, at which point clinics say that they're not equipped to do such things anyway.

I've also heard clinics suggesting 'home' smears instead, as if that was going to make a significant difference to the level of spasticity present.

Thursday, June 14, 2007 10:46:00 AM  
Anonymous Anonymous said...

As the mother of a 29 year old woman with cerebral palsy, this really, really made me cringe. My daughter has been receiving these "reminders" for some years. As I myself was once threatened with being removed from the doctors' list if I did not turn up for my smear test (simply overlooked in the general chaos, they always make my heart sink. Having given it some thought, I had come to the same conclusion as your friend - that to try to explain to my daughter would be impossible and to subject her to it would be tantamount to an assault. I just let it slide. We seldom see our GP, as her general health is, fortunately, reasonable - and no-one is very interested anyway. I have moved on slightly now from my initial cringe to feeling like issuing a howl of rage. The neglect by both health and social services of my daughter gets more blatant each year - the rather pathetic class she attends has just been barred to her because of problems with "achievement" and record keeping (teaching is at the mercy of the same idiot bureaucrats) and it is likely that the alternative will be either nothing or sitting in a day centre with the aged. How - bloody - dare they? What idiot dreamed this up? And how can they even pretend they care what happens to people like my daughter when everything else they do shows the opposite?

Thursday, June 14, 2007 12:03:00 PM  
Anonymous jg said...

Looks like Hewitt will be booking her ticket to backbenches today for good - blowing apart Gordon's "secret" NHS independence plans. What worries me, is that I think she is talking sense!
http://www.pickinglosers.co.uk/

Thursday, June 14, 2007 12:19:00 PM  
Anonymous the librarian said...

I'm with Incandenza - I fail to see how this has anything to do with evidence based medicine. The definition I'm aware of (Sackett, 1996) states it is: "the conscientious, explicit and judicious use of current best evidence in making decisions about the care of the individual patient."

In other words, the doctor is to decide when it is and when it isn't appropriate to adhere to 'best practice'.

(On a slightly related note, I spoke to a consultant the other day as she struggled to print out a series of research articles at the request of the PCT. They insisted on the full text, not merely the abstracts. "But will they read them?" I asked. "Doubt they'd understand them...", she said.)

Thursday, June 14, 2007 12:35:00 PM  
Anonymous Incandenza said...

"The Mental Capacity Act allows an adult to consent for an incapacitated adult (who lacks capacity to make a valid decision on that issue of consent)."

Do you not need to have been capacitous at some point to delegate the responsibility?

Thursday, June 14, 2007 12:35:00 PM  
Anonymous Dr TC said...

Typical NHS low-level adminidroid writing.

"...national guidance...*cannot* be ceased"

Do they mean "under national guidance patients *should* not be declined screening unless good reason blah blah blah"

Correct me if I am wrong but the screening of whatever condition is optional rather than compulsory? In which case unless a court order has been obtained the decision remains a purely medical one from the GP in agreement with the patient as far as they understand, the family and carers?

It would of course do no good to explain to the brainiacs at the PCT that the pre-test probability of this group is low therefore the value of an arguably questionable national screening programme is weakened even further.

Thursday, June 14, 2007 1:07:00 PM  
Anonymous JuliaM said...

"My daughter has been receiving these "reminders" for some years. As I myself was once threatened with being removed from the doctors' list if I did not turn up for my smear test..."

Good grief! Can a doctor actually do this?

Most people hate the continual flow of offers for loans & credit cards through the mail; they'd storm the HQ of Alliance & Leicester & burn it to the ground if they were told their bank account would be frozen if they didn't accept the offer!

Why do people put up with this treatment from NHS employees?

Thursday, June 14, 2007 1:19:00 PM  
Blogger The Shrink said...

Do you not need to have been capacitous at some point to delegate the responsibility?
- for you to appoint a donee to manage your health and social welfare, yes.
- for a deputy to be appointed to do it for you, no.

And don't get me started on how it's given us enforced community treatment orders for non-detainable patients, by the back door.

Thursday, June 14, 2007 2:43:00 PM  
Anonymous Anonymous said...

"Why do people put up with this treatment from NHS employees? "

because the complaints process is useless and you are not allowed to take your business elsewhere

no one

Thursday, June 14, 2007 3:17:00 PM  
Anonymous Anonymous said...

I stopped having smears three years ago when I asked my doctor to stop sending me reminders. I signed a form to say that I was choosing not to have them. (On the grounds that they are very painful, often need repeating when people break the slides and humiliating when you are told that you are not an easy shape.) Could these women's carers sign the same kind of form?

Thursday, June 14, 2007 5:01:00 PM  
Anonymous Funny Pseudonym said...

Charge nurse, Patients are rarely found to lack cpacity after an overdose i find.

I have seen quite a few with mentally ill patients in A&E but they are usually known and can be sedated early.

I have argued that attempted suicide mean the person is unable to give valid refusal of consent. I was told in no uncertain terms that for the sake of my career it would be better to watch the person sit there and die.. or the easy way round wait until they pass out and do whatever you feel is in their best interests.
I don't know if it has ever happened where i am (someone deemed competent refusing treatment in A&E after overdose) but i don't know if i could wait and watch knowing by the time we do anything it could be too late.

Thursday, June 14, 2007 5:48:00 PM  
Anonymous NI GP said...

Nothing to do with evidence based care, just a too rigid interpretation of a guideline.

I suppose the jobsworth dictating the letter would argue that he/she is not advocating treatment (so capacity and consent issues are not relevant to him/her), simply an offer of a screening procedure. Of course he/she would be right in the majority of cases but in this situation the persistent offer is absurd and distressing to the families involved. Surely this is why guidelines are guidelines, so that they can be ignored when they should be ignored.

As John and his friend say the tragedy here is that common sense and professional autonomy are disregarded when there is no ethical, medical nor humane reason to do so.

Again the possible argument against allowing the doctor and the family to opt out could be fear of being considered guilty of discrimination by treating this group of individuals differently from others. If this argument is proposed it merely demonstrates how daft our anti-discrimination laws have become.

Just sad

I do hope the GP involved does point out to the originator the distress and harm caused to those involved and request that the decision is reconsidered

Thursday, June 14, 2007 5:53:00 PM  
Anonymous Incandenza said...

"Patients are rarely found to lack cpacity after an overdose i find... I have argued that attempted suicide mean the person is unable to give valid refusal of consent."


Why? Refusal of consent does not have to seem rational or conform to the caregivers values or agenda. All it requires is that the patient be capable of understanding, remembering and weighing in the balance.

The entire point is to ensure the patient has a right to choose rather than having treatment forced upon them by a well-meaning patriarchal doctor (or nurse).

Your presumption is that attempted suicide is prima facie evidence of impaired reasoning, something many people would dispute.

Thursday, June 14, 2007 6:04:00 PM  
Anonymous Hyperchromasia said...

"often need repeating when people break the slides"

Not a common problem in my experience, and now we have LBC the inadequate rate should fall even further.

I do sympathise with being "not an easy shape" though, having been told that I have a "difficult" ie. nulliparous cervix. A practice nurse once advised me to have a baby to make smear tests easier - for her I can only assume. And I don't think she was joking!

Thursday, June 14, 2007 6:06:00 PM  
Anonymous the a&e charge nurse said...

Thanks funny pseudonym - people who refuse treatment after an overdose while far from being an everyday occurance are not that uncommon either.

A definitve judgement regarding capacity is not always straight forward, especially at 2 o'clock in the morning.

As you know numerous factors can impair the decision a patient might otherwise make on 'a good day' - these include alcohol, the effects of psychoactive drugs [legal or street], severity of psychiatric symptoms, head injury or organic disease, etc, etc.

My experience for what it's worth is that psychiatrists generally have had a lower threshold for diagnosing [temporary] impairment, and hence recommending that treatment, for the physical emergency can be imposed under common law [but NOT the MHA] on the grounds of best interest.

May I refer you to Hassans study [1999] in the BMJ 'Managing patients with deliberate self harm who refuse treatment in the accident and emergency department'
And Hewsons article [1999] again in the BMJ
'The law on managing patients who deliberately harm themselves and refuse treatment'.

I know of at least one case referred to the ombudsman after a woman died after drinking bleach - the A&E processes were founding wanting, and the ombudsman concluded, 'staff did not seem to know what to do, so did nothing'.

I was working in an A&E department that was involved in a legal action when relatives complained about a female who died after taking a paracetamol overdose - she walked out after refusing treatment.

The incident happened at the dreaded hand-over time so a full assessment of capacity had not been completed.

I know these issues are unrelated to Dr Crippens original post but if we are going down the road of treatment by proxy on what basis will PCTs manage these difficult cases.

Thursday, June 14, 2007 7:21:00 PM  
Anonymous Matt said...

pascal says "The one thing that bothers me is the "I give up" line."

This is more likely to be an expression of exacerbation that a staement of fact!

Thursday, June 14, 2007 7:57:00 PM  
Blogger DorsetDipper said...

yes yes completely insane.

Here's someone who agrees.

http://stumblingandmumbling.typepad.com/stumbling_and_mumbling/2007/06/time_to_abolish.html

Thursday, June 14, 2007 9:19:00 PM  
Anonymous Nearly Doctor C said...

During a GP attachment not long ago I got into it big time with a GP partner over the issue of smears. My crime was telling a young lady of 23 (this practice is in an area where local policy is for smears from 21, not 23/5) she didn't need to bother with a smear. As she was a virgin i told her, she had negligable risks of cervical problems, and should ignore/reject any smears until she had lost said virginity.

The GP tore strips off me both in front of the patient and at a practice meeting later that day. Talking about taking valuable QoF points away, and that you 'had to do' smears on everyone over the age of 23.

Tosser. Just because you have a fricking medical degree - ro nursing degree for that matter does not make you an expert. aS it happened I had writtena few papers in my time on HPV and cervical cancer, so was well aware fo the fact nuns do not get it. virgins, do NOT get it.

Maybe I'm being some arrogant barstad, but it seems to me that as we dumn down areas of medicine by replacing doctors with nurses, uber-specialising, and relying ever more on copmputers for everything from prescriptions to examination checklists, we dumn down the doctors too.

and with that i pray i don't end up looking a tit and failing my finals this week...

Thursday, June 14, 2007 10:09:00 PM  
Anonymous JuliaM said...

"Talking about taking valuable QoF points away, and that you 'had to do' smears on everyone over the age of 23."

Have to...? Are we not 'customers' as we keep getting told in the literature put out by the DoH?

Strange, I can walk into Sainsbury's and out again without being frog-marched to the till & forced to buy some fruit 'for my own good'...

So why should someone accept a medical procedure they don't want or need so some DoH drone can tick a box?

Friday, June 15, 2007 5:49:00 AM  
Blogger John said...

Are you absolutely sure these patients are virgins? Despite what families and carers think, this almost always, in my experience, and in the literature, turns out not to be the case.

Friday, June 15, 2007 11:00:00 AM  
Anonymous Anonymous said...

anaru

have a look at http://www.haloscan.com/comments/drcrippen/4881712773636068106/
concerning nurse practitioners. Make sure she writes her own letters, and does not copy yours.

Friday, June 15, 2007 1:07:00 PM  
Anonymous vervet said...

Juliam .....

"Strange, I can walk into Sainsbury's and out again without being frog-marched to the till & forced to buy some fruit 'for my own good'..."

Ah ... but for how much longer if Nanny Hewitt retains her post ?

Friday, June 15, 2007 2:43:00 PM  
Anonymous jayann said...

juliam, nearlydoctor ran into an unreasonable GP (and presumably a money-grubbing one). Nobody has to have a cervical smear if they're capable of refusing. Nobody has to have a mammogram, either. No doctor 'has to do' these tests on all patients. (Etc.) John's friend's problem arises because he is GP for a group of women who cannot give/refuse consent and because the procedures for what's in effect a proxy for that are cumbersome.
We need procedures to protect people in various types of institution. (I say that with feeling.) Unfortunately they can have negative as well as positive results.

Friday, June 15, 2007 3:59:00 PM  
Anonymous JuliaM said...

Jayann, it isn't just nearlydoctor - see the comment by 'anonymous' at Thursday, June 14, 2007 12:03:00 PM.

She claimed she was threatened with being struck off because she forgot to take a test.

If these tests are linked to funding (I presume because of the 'moneygrubbing' remark...?) then is it not inviting this situation?

Friday, June 15, 2007 5:14:00 PM  
Anonymous jayann said...

juliam yes you're right, I forgot about anonymous' being threatened. But the thing is, the policy doesn't actually require that some doctors (and, it seems, PCTs) behave like jerks.

If these tests are linked to funding

as they are (the smear tests anyway, mammograms, ?). I just don't see that as an excuse for bad behaviour by doctors (and PCTs). My GPs don't behave like that (even though, I'm pretty sure, they too will get QoF money if they hit whatever the target is), I assume the vast majority of GPs don't. IMO anonymous' bad experience isn't an argument against the cervical smear policy, it's an argument against GPs' being able to bully patients with -- it seems -- impunity.

Friday, June 15, 2007 6:02:00 PM  
Anonymous Anonymous said...

I understand why the PCT did it though. Next year if one of these LOLs is found to have metastatic cancer, the tabloids would have a field day going on about how NHS cutbacks are forcing old women to die of cancer. The Something Must Be Done brigade would be picketing at the PCT office, and every television channel looking for sound bites would easily find eager relatives describing how they feel "gutted" and "devastated".

Common sense went out of medicine a long time ago, with the introduction of heuristics and protocols. Ultimately the public gets the health "service" it deserves.

Friday, June 15, 2007 9:22:00 PM  
Anonymous previously anonymous carer said...

Anon 9.22: You are probably right that the PCT did it for fear of the tabloids they certainly weren't thinking about what is best for severely disabled women. A moment's thought by them (and you) and they could have worked out that if they were politely and tactfully offered the chance to have the tests, and they/their carers/their doctors decided against it, the tabloids would have little to say. And actually, in my experience, tabloids and most others show little interest in what happens to adults with these kind of disabilities. Most of the people who have commented here deplore the bullying tactics, but I am the only one who is likely to be affected by it. Believe me, it is tough to have to be responsible for the health of someone who cannot take responsibility themselves, and can not clearly comunicate what they would want or how they feel. Dealing with those who think they know best but actually understand very little is a pain. If I'm dubious, my daughter is unco-operative, the doctor wants his fee and the social worker couldn't care less, who decides?

And in what sense do we get the health service we "deserve"?

Friday, June 15, 2007 11:36:00 PM  
Anonymous carer mum said...

OOps - I meant I am the only commenter to be affected by it. What I meant was that most carers will not know about it, and most of us are too beleaguered or exhausted to argue. It isn't caring for my daughter which is hard work - for the most part, she is a delightful young woman - it is fighting off or dealing with the various nonsenses like this - the protocols and initiatives, often well meaning, but based on very abstract notions of what is needed - and often having more to do with saving money and saving jobs than any real understanding of their effect. I have watched with horror as Care in the Community has become worse and worse. What I need from the medical profession is a way of making me immortal, as I do not give much for my daughter's chances when I am not there. Do you have patients like my daughter, Dr. Crippen? What's it like trying to get decent services for them?

Saturday, June 16, 2007 9:34:00 AM  
Blogger Dr John Crippen said...

Do you have patients like my daughter, Dr. Crippen? What's it like trying to get decent services for them?

Carer Mum

+++++++++

Yes I do, and it is a constant battle against poor recourses; it is difficult enough to get proper help for handicapped children, but once they become adult they seem close to invisible to the NHS.

There are a few dedicated professionals around but I am afraid a lot of people in the NHS - and I include doctors and nurses in this - tend to switch of when they are approached by patients with mental and physical handicap.

Not something I am proud of



John

Saturday, June 16, 2007 10:07:00 AM  
Anonymous Anonymous said...

"It isn't caring for my daughter which is hard work - for the most part, she is a delightful young woman - it is fighting off or dealing with the various nonsenses like this - the protocols and initiatives, often well meaning, but based on very abstract notions of what is needed - and often having more to do with saving money and saving jobs than any real understanding of their effect. I have watched with horror as Care in the Community has become worse and worse. What I need from the medical profession is a way of making me immortal, as I do not give much for my daughter's chances when I am not there."

Very poignant words, carer mum, and ones which I shall remember.

(Dr Delilah)

Sunday, June 17, 2007 10:22:00 PM  
Anonymous Sam said...

I'm stunned how arrogant and militant the cervical screening people are in the UK.
Asking a woman to leave a practice because she hasn't had a test! I would have spoken to my solicitor...
What part of informed consent don't they understand?
No wonder the General Medical Council have taken steps to stop this outrageous and unethical conduct.
Dr's receive financial incentives to reach screening targets and that's why these high handed approaches have been adopted by some doctors - nothing to do with your health, it's about MONEY.

In Australia, our Dr's are also paid, but my Dr and her partners have always respected a patient's right to choose.
I don't participate in either cervical or breast screening - informed decisions after doing lots of research and looking at my risk factors.
Anyway, the GMC have now said that a Dr must advise the patient that
a) They have a conflict of interest and are paid to reach targets;
b) The patient has a low chance of benefiting from screening;
c) The patient has a fairly high chance of an incorrect test result - false negatives and false positives (the latter usually leads to colposcopy and biopsies)
and d) the Dr MUST respect your right to choose and seek informed consent from you...
Dr's can offer the test - but they can't recommend, scare, threaten, pressure...
How sad that this was even necessary...
The facts about screening might surprise you anyway - it's an unreliable test for an uncommon cancer - which means lots of women suffer the anxiety of a false positive. Many women find colposcopies and biopsies very unpleasant and painful - some women are left with permanent damage which can affect fertility & cause problems during pregnancy.
Three yearly screening means 65% of women will have biopsies with only a very small number having any sign of cancer.
Good for you Dr...making a stand on behalf of your patients - imagine their distress if they then faced biopsies for a false positive.
I have never understood this campaign which IMO is fueled by keeping women ignorant and afraid...
Dr Angela Raffles (UK cancer screening expert) released some amazing figures - 1000 women need regular screening for 35 years to save ONE woman from cervical cancer!
If more women had access to this information, they may well choose not to have screening or have it less frequently...
I have a risk v benefit test - if the risks outweigh the benefits, I refuse the test.
Dr, can you report these people to the GMC or seek a court order?
It seems to me their conduct has already been called into question - their strategies and the scant and biased information released to women (with very little risk information)and their total disregard for informed consent.
I hope you can put these people in their place.
It saddens me to see so many women living in fear - of the next test, the indignity, another biopsy, pain...
It makes no sense at all....

Tuesday, May 12, 2009 1:29:00 PM  

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DR CRIPPEN'S DIARY

Dr John Crippen's weekly diary. The trials and tribulations, the pleasures and pitfalls of family medicine in the modern British National Health Service.

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