Morgellons Disease
Morgellons Disease is an unpleasant sounding illness, found predominantly in the United States. It is particularly common in the San Francisco Bay area. It was only first described and named a few years ago:
In 2001, biologist Mary Leitao's 2-year-old son developed sores under his lip and began to complain of "bugs." Leitao examined the sores and discovered red, blue, black and white "bundles of fibers." She took her son to see at least eight different doctors who were unable to find any disease, allergy, or other explanation for the symptoms, but her son developed more sores, and more fibers continued to poke out of them. She chose the name Morgellons disease (with a hard g) from a description of an illness in the monograph A Letter to a Friend by Sir Thomas Browne, in 1690, wherein he describes several medical conditions in his experience, including "that endemial distemper of children in Languedoc, called the morgellons, wherein they critically break out with harsh hairs on their backs." (Wikipedia)A research programme is about to commence in California:
Bay Area researchers are beginning the first major U.S. study into a mystery disease known for its frightening symptoms - among them, open sores and unidentifiable objects poking out of the skin ... (source)The disease sounds pretty unpleasant. But that is not the biggest problem. The biggest problem is that half the American medical profession (or more) think that the disease does not exist other than as a psychiatric entity. They think it is a major delusional illness, “delusional parasitosis”.
Naturally, this makes the sufferers angry, and naturally they fight back.
The Morgellons Research Foundation (MRF) is a non-profit organization:
“dedicated to raising awareness and research funding for a newly emerging infectious disease, which we refer to as "Morgellons disease." The disease can be disfiguring and disabling, and it affects people of all age groups, including children. Multiple family members are often affected at the same time, and the disease appears to be spreading at an alarming rate”.Oh dear, oh dear. Here we go again. Dr Crippen had never heard of Morgellons until he received an email yesterday from an American sufferer who is not being taken seriously by her doctors. Consultations with Dr Wikipedia and Professor Google have not been too helpful. The picture of the boy's back (above) looks like allergy to me, but I know nothing of Morgellons. This sounds like the beginnings of anther Chronic Lyme Disease or Myalgic Encephalomyelitis controversy.
Does anyone have any personal experience of it?
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A reader draws my attention to Morgellons Watch which seems to be an excellent and balanced source of information.
Labels: Morgellons Disease
27 Comments:
I read about this in the metro recently. The "doctor" commenting then claimed the fibers were from clothing and got stuck to the open sore caused by the patients stratching. To me it seems highly unlikely coloured fibres could be produced by the body. Especially blue which is not a colour prevalent in nature. Who knows! However tarring them with the mad brush seems unfair.
I came across this site:
http://www.relfe.com/07/Morgellon's_disease_possible_cure.html
Seems nanotechnology is to blame. The fibres are made by a machine called a goldenhead, which looks like a bendy pencil with a rubber on the end. It can be cured by suppository, detergent and falling on an electric fence. I don't know how you feel gentleben but this does not appear to be the work of a sane mind to me.
You are right, of course, i was tryingf(for once) to have an open mind. The cures sound interesting though. Do you have to use the detergent as a suppository? Or do you have to do all the cures at the same time? This would be difficult and uncomfortable. Also access to elecric fences is limited, maybe patients could use "choose and book" to find the nearest electric fence.
gentleben
I had a co-worker who claimed that she suffered from this condition, and that her working environment was to blame. She tried to get disability benefits on the strength of it.
Mind you, she was a walking encyclopaedia of environmental pathologies, including electromagnetic fields, odours, WiFi, cell-phones, VDTs, toner, you-name-it - all of which she also used to try and get disability benefits. If it existed in the workplace, she was allergic to it.
Based on that one, single exposure, my impression is that's it's entirely delusional. It's not like there's not plenty of conditions in which people feel they have things crawling over or in them. But I am not an MD.
llater,
llamas
just read the link...
fuck she is definately mad
Well if blue fibres aren't prevalent in nature how come belly button fluff is always blue?
Or is that just me? I'll get my coat...
The boy's back clearly shows the results of skin prick testing. Surely not the image intended?
I read an article in the paper last night that said that the CDC is going to start looking into it- it was all over the news in North America a year or so ago, but no one ever seemed sure whether it was real or not. The CDC's page on it is at http://www.cdc.gov/unexplaineddermopathy/investigation.html
The boy's back clearly shows the results of skin prick testing. Surely not the image intended?
Friday, January 18, 2008 12:12:00 AM
Delete
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It is EXACTLY the image intended. If you click on it you will see where it comes from - a subtle bit of subliminal misinformation?????
I know it is patch testing. But it is being used for other purposes
John
I learned about this in my first house job in 1972. In that case a patient was claiming to be infested with worms. He rubbed his hands together to get small cylinders of dirt and shed skin cells which he claimed were the infesting organisms. My experience of this condition is limited, but it is a form, I think, of delusional psychosis. Not very amenable to treatment, as patients are convinced that they have a physical infestation.
The excellent Morgellons Watch is the definitive source on this.
I don't have anything to offer on subject of Morgellons, although ISTR a feature in New Scientist on it recently, but as you mentioned Myalgic Encephalomyelitis, I'll take the opportunity to plug the ME conference on 23rd May, London, the previous two were fully CPD accredited, very likely this one will be too, http://www.investinme.org/IiME%20Int%20Conference%202008/IIME%202008%20International%20ME%20Conference%20Agenda.htm
Or you could try the one in Cambridge 6th May http://www.meresearch.org.uk/newhorizons2008.html
Or indeed Southampton in Feb.
I don't know much about Morgellons, but would a small kid get delusional psychosis? I mean, could a kid even think of something like that?
At the risk of being abused ferociously by MAMA, a small child with this sort of skin rash would surely raise the possibility of FII? Or is that just me being nasty and suspicious?
This is certainly going to be the bane of many doctor's existence for a few years, until the folie a news passes in a few years.
For those who are sick with Morgellons Disease and would like an atomosphere of support and not the hype seen online,please visit here:
http://morgellons-sanctum.org/forum/
There is nothing more frustrating than stumbling upon pages of skeptics. This is exactly what happened when the AIDS claim came about and the symptoms of Lupus were complained of. Lyme Disease is also not universally accepted, yet. We seem to be natural skeptics, how fab. A lil advise, if you don't know what you are talking about, shut the hell up!
I have had this stupid, nightmarish crap screwing with my family's lives for 4 years now. If it weren't in existence, I wouldn't be waisting my freakin time worrying or giving a shit about it. I certainly wouldn't spend my time running about, attempting to discredit anyone who claimed to be having a problem with it. I have spent an enormous amount of time(more so in the previous 3 years)doing my homework trying to solve this unfunny riddle of a problem. The boys back is real to it's claim. If you know what it looks like, if you know how it is, if you know it's possibilities then you know he has a severely chilling case of Morgellons. The pic made my eyes water up. The poor child, he does not deserve such unpleasantness. I agree 100% with the nano theory, I have since I first learned of nanotech 3 years ago. Environment also plays a role in this. Along with it's evil creators. Do you see the circles on his shoulders (one lrg. on each side, solid in color) That's the first obvious clue, look at other Morgellons photos or images. The only delusion I have is when I try to pretend that I do not have it!
My Squidoo Lens on this topic:
http://www.squidoo.com/fiberdisease
Well... I have to admit... if I had not seen this with my own 2 eyes, I too, would not have believed it. It sounds, CRAZY-I get that. Unfortunately, I am one of the unlucky individuals suffering with such horrific symptoms. The only common denominator seems to be this 'matter' which emerges from ones skin-whether it's intact or not.
Nano technology? Sounds a bit out there... but, mind you, there are a million different theories circling the internet & that is JUST ONE.
I just don't understand why it is so hard for doctors or anyone else to believe that this 'matter' is being excreted through one's pores. If the body rejects something...
We sweat, blackheads, whiteheads, etc. I don't think that so many sane & productive members of our society would lead fabulous lives and then suddenly "lose it"...
Of course, there will always be "crazy people" within ANY group of individuals & I do believe that this particular ailment would likely attract more of these types due to the nature of this illness.
It gives so many of the TRUE BLUE "DOP" patients/persons a free "ride"-at OUR expense.
For those of us afflicted with this, it is beyond frustrating to have so many crazy people & even crazier theories out there floating around the internet.
understandably, it discredits us and makes our attempts to be validated by the med community even that much more difficult.
However, the truth will come out. It has to... it always does... so, until then-we wait... suffering in the most horrifying way... while people scoff, mock, and lable us without so much as a second glance.
Still... "Morgwatch"... do your research on the individuals who spend their lives on that site claiming that because they once suffered from a mental illness-we must be too... ask yourself WHY they aren't out living life to the fullest and enjoying their newfound sanity... they'd rather stare at a computer screen day and night to "debunk & degrade" people who are SUPPOSEDLY... simply suffering from something similar to what they once had... hhhmmm? I would think that would make EMPATHY a whole lot easier for them, but instead, apathy reigns on that site... to a disgustingly UNHEALTHY degree.
Regardless or Irregardless... everyone agrees that we are sick-right? Even IF it WERE a mental illness... how/why is such cruelty okay and considered sane by ANYONE'S standards...
Ladies and Gentlemen, Boys and Girls... This thing is for real.
I had never heard of this bizaar condition until one day a few weeks ago something really strange looking emerged from a lesion on my body that I have had for years. A lesion that has been treated by several doctors with no success at getting rid of it.
This "thing" that emerged looked kind of like a tightly tangled up thread around "stem" of maybe a quarter inch in length and a sixteenth in diameter. Anyhow, I googled "fibrous tissue" and began to read about Morgellons. To my shock and horror I soon realized, with the aid of a magnifying glass that I too have black, red, blue and white "fibers" coming out of my skin from the area around the lesion as well as most other areas of my body where there is hair.
I'm not comfortable with most of the whacked out theories I have read about on the internet but I am desperate to know the cause. The most credible in my mind is the connection to genetically modified organisms and the presence of agrobacterium in the few sufferers that have been tested at Oklahoma State University.
Kaiser in Northern CA is doing a study on this condition in conjunction with the CDC. I am confident that within a year's time there will be much more information available and possibly a cure, or standardized treatment. Until then, I have chosen to just try to remain calm, exercise, keep my immune system strong and try not to let it bother me too much.
We wash my clothes separately from my wife and daughter's now and I try not to have physical contact with either of them if I can avoid it as nobody seems to know whether or not it is contagious. I no longer make toast and oatmeal for my 11 year old daughter in the morning for fear I may give it to her.
My general practitioner looked at me as if I had lost my mind when I went to see him a couple of weeks ago. I explained what I have seen and read, and that the fibers apparently were made of cellulose, according to OSU. He was polite but he obviously thought I was imagining things.
Folks, I'm not crazy... I know this is real. It's new, it's scary if you have it. Try and keep an open mind and understand it may just be the doctors that are deluding themselves into thinking that there just can't be an illness out there that they have no knowledge of or experience with.
To fellow sufferers:
Hang in there... help is on the way.
I just finished a book called "Parasite Rex" and then (a few minutes ago, while researching for a friend of mine from Iran) found a picture of hookworm larvae under the skin. There are more parasites then there are mammal species. If I had the problem, I'd look for answers too.
As a physician who has treated more than 150 cases and researched for five years, anyone who questions the validity of the illness has simply not studied the situation. Pat Robertson said, ¨The Lord forgives sinners, but dumb is forever¨and I agree. The important questions are to define the causes, work on cures and stop the enormous suffering. TRUE, A STRANGE ILLNESS, WITH STRANGE FIBERS, POORLY HEALING LESIONS, CREEPING-CRAWLING SENSATIONS, MENTAL CONFUSION, but very real. THE WORLD-WIDE EPIDEMIC NATURE IS STARTLING. we find the best early treatment is extraction baths(www.earthwaterbaths.com) and then go on to anti-parasitics. I DON´T MIND SKEPTICS WHO HAVE DEEPLY STUDIED AN ISSUE AND THEN QUESTIONS ASPECTS. I object to people who are ignorant, but like to pretend skepticism as a form of arrogance and superiority. Go to www.healingresearch.org and get some info. Write to me at drgschwartz@healingresearch.org.
I have been studying Morgellons for many years, spoken with hundreds of Morgellons patients and most of them said that Nutrasilver is the only real effective treatment. Give it a try; I am certain that you will see astonishing relief. www.nutrasilver.com
Written by ConnieM
Thursday, 22 February 2007
Click HERE to watch the video
http://www.morgellonshope.com/content/view/690/46/
Hi! My name is Connie and I’m a victim, I believe, of a disease presently known as Morgellons. I have traced my symptoms back to as far as 10 years ago, based on the information I’ve receive from other people that have this infection. I am a 54 year old female. I was born and raised in Nevada. I live, presently live, in Reno. And I have all my family here, I’m divorced and I have one adult daughter. And just to begin my explanation of my experience, I’ll tell you that there’s no one in my network at this point in time that shown these symptoms visually or otherwise. About a year ago, at this time… it was in January, I noticed some little green fibers that were starting to show up on my hands and arms. And I attributed it to disassembling an artificial Christmas tree that I had. I thought maybe it was the remnants or remains of particles from the manufacturing of the tree. Well the symptoms didn’t go away, and they actually got worse. I started noticing that I was more depressed. I have had a problem with what is known as “brain fogging” for many years, but it seemed to escalate at that point of my life. I was having a lot of joint pain... wondering if… why am I having arthritic pain in summer months. I was suffering confusion, frustration… I was tired all the time. I slept a great deal. I napped when I could. I just seemed like I couldn’t get enough rest. About four months passed, maybe five and in May I was talking with a friend and I showed him my arms and said “Look at this!”
In that four month period these lesions had began to surface where the fibers where… where, this fibrous material. Now granted, I could see these with the naked eye. I did not need a microscope. Some of them were curly. Some of them where short. Some of them were a little bit long,
less than a quarter of an inch, but they were all green and they were all real. I, at that point collected some samples of them. Put them in a plastic vile. I took them to a dermatologist and she absolutely refused to acknowledge that my little “so to speak”, “matchbox sample” was real. What she told me when she saw these lesions, and at that point they were very bad and I had it up and down the tops of my arms, and I had them at the back of my hands…
she keep kind of nagging me and saying “Don’t pick at yourself anymore. Don’t pick at your, your hands”. Well I walked away angry from that particular encounter. A few months later while I was still fighting with this lesions, I went an saw an “Ear, Nose and Throat” doctor, because I was having a tremendous sinus problem where I was blowing a lot of blood and strange mucus out of my nasal area. And interestingly during the… after the x-rays, on the a pre-op visit, he looked at me and he said we’re gonna get in there and fix this deviated septum. And he said were gonna look at this other tissue in there or this other matter. Well this other matter, I’m firmly convinced was Morgellons, and it was, you know, the disease building itself in areas in my body where it could breath and grow which were my sinuses, my throat. I had chronic sore throats. And then a friend of mine… well, this friend showed me… Introduced me to NutraSilver… and at that point I was desperate. I had no other way to turn. I had been to dentists. I had dentists look at my teeth and tell me there was something not right. I’ve had this derma… two dermatologists… I had gone to a dermatologist ten years ago, and I was treated with massive doses of antihistamines. Three different kinds… because I had this severe itching. When we discover when these symptoms probably began, at the onset I had these terrible attacks of itching on my arms and couldn’t wear any heavy clothing. I couldn’t wear any animal knits. Nothing… I mean I was miserable! I went to my family doctor and we thought maybe I was going through the “change of life”, which I wasn’t. They did a test for that. My blood pressure was checked and it was determined that I had a high blood pressure. I’m self diagnosed. There’s no doctor in this area that I can find that is willing to acknowledge that I have this disease. So I… this is all my diagnosis… my opinion. It’s my body, I know what’s going on with it. But anyway up until that point these symptoms just keep building and persisting. What brought them to the surfaced where the lesions were visual, I believe was stress.
I was going through a very depressing, debilitating, personal part of my life. Last, a year ago this last May. And it was then that the lesions started to form, and they were coming out. They were started on the lower part of my arms...
and they were slowly gravitating up in my arms. I had them on my hands.
I was starting to see a little bit of tunneling, but not much.
And I went to visit a friend one day, and he looked at my arms he says “Wow! I have something I think you need to try.” he says, “Just take this and rub it on your arms.” and so we did… or actually it was, at that point it was just on my hands. And so I rubbed it on my hands, and “My god“… I could not believe it! I had skin and these little fibery things just coming out of my hands.
Out of my palm… the back of my hands. We were both amazed! We were just sat there and watched this for about an hour and we couldn’t believe it. And so we thought well, let’s try this. Let’s try putting it, you know everywhere that I have an open lesion or an area that looks likes its you know it’s been exacerbated by this affliction. So I did, and after several months of using this, and journaling about it and photographing it, I realized that the lesions that I was putting the NutraSilver on… That’s the name of the product that we’re talking about, were healing and I was actually having… I don’t know… matter coming out. I don’t know what you wanna call it. Maybe under a microscope...
you might see a parasite or two. I don’t know. Some of it looked like it was moving and live, and I was having many more fibers. I started getting red. I started getting blue. I started getting uh... I mean these things glowed…
under a camera eye. Well what we realize is that the lesions I was putting the NutraSilver on were healing, but I was getting new breakouts, new sores in other areas around that. So we realized, or I realized that it was spreading. It wasn’t getting better, it was getting worse! And so we stopped the NutraSilver. I went to a deep depression and thought you know, this was, “Now what am I gonna do?” and...
Then I said to my friend… my colleague… I said “You know? Something strikes me here if the NutraSilver has the effect of spreading or moving this parasite or whatever it is under the skin, what would happen if we tried it internally? Took it orally? If it moves on the skin, maybe it would move through the blood streams and the body and push it out?” And so that was our next motivation was to try that, and in a few words it worked! It was the most phenomenal difference for me in my whole well-being and visual observation of what is going on. We started me with ten drops twice a day… excuse me… three times a day, in water and I tried to you know make sure that I took it at the same time each day, morning noon and night. Within the first 24 hours I noticed a tremendous change in how I felt psychologically. My mind was clearing up. My vision was… I didn’t realize before but it, this was affecting my vision. I was having a lot of blurred vision which I thought was just me because I am severely nearsighted. I started eating better. The lesions began to heal, slowly but they begin heal.
The chronic fatigue disappeared within a week. It was like my whole new part of my life had erupted, and I still need a lot of rest because the symptoms of this disease actually keep me awake at night. There were times when my feet would tingle or I’d get these, uh you know there’s a syndrome out now that they talk about where your legs do funny things and the muscles twitch. Well my feet did that a lot… and my hands as well.
That stopped with the use of the NutraSilver internally.
The depression lifted. It didn’t completely go away because my depression is hereditary. I have since started taking 40mg a day of Prozac and I doing really well with that, but initially I think the NutraSilver did have an effect of my depression. The brain fogging… gone! It was essentially gone. My memory was good. My short term memory was good. You know I was even starting to recall how this disease have progressed over the years when I started learning about how and what other people had. The healing was amazing, and again, I still, it took… the lesions healed quicker with the use of the NutraSilver...
and it took a while because I had quite a few on my arms and I started having them show up on my legs
and that started happening when I was using it topically and that’s really when we got scared and realized that you know we better not do this topically anymore because whatever this thing is, its in my body and what the NutraSilver was doing topically was just moving it… and my thought was well if its moves by use of it topically… “What would happen if I took it internally and got it in my blood stream?”. Again we saw amazing results!
The other thing I noticed right away too was my joint pain. I would get up in the morning and I had very little back pain, and now I have none. Oh lets see…in October, September-October of last year.
We decided to do a purge. We came up with the formula with the NutraSilver and decided that, you know, my symptoms not quite all gone away and we wanted to try to possibly see how far we could push this whole thing since what I was doing was working very well on that regular basis. So we upped the dosage and began what I call the “three day purge”, and at that point I started taking 7ml (approximately 150 drops), which is one small little container of the NutraSilver diluted in a glass of water. Very little water, 2 to 4 ounces actually, because we wanted it to get it into my blood stream quickly and absorb quickly. So I started doing that three times a day. On the first day I took my first dosage at about 11:30 in the morning, and twelve hours later… that night… about eleven o’clock… the purge began and it was horrific! It was absolutely horrific! I wanted somebody to be there, and then I didn’t want somebody to be there, because I didn’t want anybody to see me. But I had… I’m gonna call them parasite, because I believe that’s what they were.
They were small. They looked like worms. Very small. Kind of beige-y color. Very wormy looking. They were soggy. I had, initially I had them coming out everywhere they could. Wherever my body had an orifice… my eyes… my mouth… my nose…
and they seemed to be predominant in my nasal, my sinus area. And I realized that they were gonna push out through my skin wherever they wanted to. That they may go to areas of my body where, that had not been exposed to
the parasite yet. So I… after the first… What do I want to call it? Not phase? But after the first episode. I waited to see how long it would take this cycle to begin again, and I continue to take the NutraSilver in the 7ml amount, in 2-4 ounces of water, for three days straight. And what occurred is a cycle. These critters have a cycle to them. They’re just like any other parasite.
I would get about a 45 minute break in between, and then they would flair up again and start coming out of my skin… my finger nails… my toe nails. They were coming out of my feet.
So I decided I wanted push them out one or two areas only, and “vector” them as the scientist would say. Push them in a certain direction. So I used a combination of Vaseline and NutraSilver, and began to coat the parts of my body that I wanted to push, to keep the parasite or...
creature from coming out of, and it worked! What I did was I pushed them out through my finger tips, my toes, the bottoms and the heels of my feet. My biggest concern was my face, because I could see them tunneling up my eyes. I could see them in the corner of my eyes. You know I was even able to pick them out of my eyes in some point. I could feel them in my ears, and that was another area. And that was a tough one because you can only get Vaseline in there so far. I had to keep my scalp extremely moist because they wanted to come out through my scalp and my… Of course, these little guys like the hair follicles and that’s what they thrive on. For months I had these little curly hairs on my legs, caused by the parasite living off by the follicle. I’m sure. Feeding off of it . But this purge was…
It was incredible! I did get some video on it. It would have to be cleaned up in the laboratory to see, but I had them coming out my lips and in corners of my mouth…
Flowing. They were spilling out during purge. My feces was loaded. I mean for three days after they purge I was, I could see them in the toilet bowls and I know that its not a very pleasant thing but you need to understand that the NutraSilver forced this thing out of my body and I tried to, I really did try to journal it but it was very difficult. It was very ugly. It was very depressing. It was very hard for me. Doing this video is difficult because I know there’re going to be a lot of people… Maybe even scientist? Maybe even doctors? That will review this video and they’ll laugh at me and think I’m nuts. Well you guys are the ones that are nuts because I’ve been there, I know what this thing did to me, and I know how much it affected my life and changed my life. It completely altered my life to the point that I considered suicide. I didn’t want to have go on living that way. Afraid of going in public that I would break out or that one would come crawling out of my eyes. The fibers were the most phenomenal thing in this purged.
I have the photographs to proved it; balls of fiber with a little body of some kind, a little round jelly like body in them. Almost that had a little eye on it, that almost looked like a camera. Ok? I mean it look like an eyeball with hair on it. And I had those poring out of my scalp. I was finding them on my carpet after the purge. But I did come up with a, you know a crude way of controlling their exit. I wish now I would have collected some sample, but I was in so much pain even as medicated as I was… and I was alone. It was difficult enough having to transform myself from this hideous monster...
into the person I am right now.
and I have… the before and after photographs...
prove my story. This is a real. This disease is real.
The symptoms are real. The NutraSilver, I feel, it gave me back my life! It gave me back my livelihood. It gave me back something that I thought I had lost! Either the disease was gonna kill me or I was gonna kill my self.
I’d like to make a closing comment. I have no need to sit down and make up a story like this. It’s not a make up story. This is a reality. NutraSilver saved my life. It gave me back everything I ever wanted. I’m not making any money by making this video. I’ve asked for the copyright to it, only because I wanted to control where it goes and who it goes to. But I want the world to know what NutraSilver did for me, and “come hell or high water” so to speak, I want everyone out there that suffers from this disease to know that you have my support, you have my love and I will do everything I can to bring you my story, my experience and encourage you to try this product. At least buy one sample of it and try it because it saved my life. I wouldn’t care, you know, how much it cost me or what. Like I said I’m not getting paid to do this. I’ve not been coerced by anyone, I’ve not been asked or given any favors. I just want the world to know that I know there a lot of sufferers of Morgellons out there that have no hope, and hopefully this video will give you that hope.
yeah that is real danger
希望大家都會非常非常幸福~
「朵朵小語‧優美的眷戀在這個世界上，最重要的一件事，就是好好愛自己。好好愛自己，你的眼睛才能看見天空的美麗，耳朵才能聽見山水的清音。好好愛自己，你才能體會所有美好的東西，所有的文字與音符才能像清泉一樣注入你的心靈。好好愛自己，你才有愛人的能力，也才有讓別人愛上你的魅力。而愛自己的第一步，就是切斷讓自己覺得黏膩的過去，以無沾無滯的輕快心情，大步走向前去。愛自己的第二步，則是隨時保持孩子般的好奇，願意接受未知的指引；也隨時可以拋卻不再需要的行囊，一路雲淡風輕。親愛的，你是天地之間獨一無二的旅人，在陽光與月光的交替之中瀟灑獨行.......................................................................................................................................................................................................................................................................................................
Morgellons Economics; Who Wins and Who Looses?
I have spoken to well over 1,000 Morgellons sufferers in the past 3 years during my direct involvement with Morgellons Disease. Most are ordinary people from every walk of life while some are medical professionals themselves infected with this disease or care for those who suffer.
Morgellons Disease is characterized by these symptoms: non-healing lesions, ‘brain fog’, depression often leading to suicide, multi-colored fibers growing from their skin and most disconcerting, the relentless sensation of being bitten on and under their skin. The Morgellons Research Foundation, located on the campus of Oklahoma State University, states that there are approximately 93 typical symptoms and each individual with Morgellons has some but not all of these symptoms.
Most Morgellons victims tell the same story; they are diagnosed with Delusions of Parasitosis (DOP) and labeled permanently in their medical record as having ‘Mental Health Issues”. Most doctors will not even look at the lesions and tell their patients to “stop scratching yourself.” Those who are prescribed medication through misdiagnosis spend a great deal on medications that effectively do nothing for them. Many follow the message boards on the Internet and desperately chase lotions, potions, chemical and herbal remedies only to experience no improvement. Those who suffer the longest often tell me of how the medical profession takes their money and all they get is worse.
Many Morgellons victims tell the story of how they have lost their jobs, homes, savings, and family and just about everything else trying to get relief. They feel alone and isolated and often ‘cocoon’ in their homes. I hear this far too often. Some call me crying out of desperation and loneliness; it breaks my heart.
Most medical practitioners seem to be into Morgellons treatment just for the money. There is a PhD in Los Angeles who knows of an effective treatment but does not use it because she does not make any money on it. There is a Nurse-Practioner from Texas whose medical license was suspended by the Texas Medical Board for prescribing antibiotics too frequently who now commutes to San Francisco under a California license to treat Morgellons patients. She continues to administer antibiotics to Morgellons patients with no results. She charges $500 for the initial visit. All the Morgellons patients received for their hard-earned money is they get worse.
Imagine, over 40 US Senators and Congresspersons have written to the US Centers for Disease Control (CDC) requesting them to conduct an investigation into Morgellons. It only took six years for them to begin their investigation in Oakland, California at Kaiser-Permanente Hospital with funding of a mere $338,000. That amount of money is barely enough money to begin an investigation yet alone complete one. Their investigative conclusions are due in May, 2009.
As this infection continues to spread globally, little scientific attention is being paid to those who have Morgellons and suffer with no hope and no help from the established medical and scientific communities. Apparently, there are not enough people who suffer Morgellons for scientific research to make research financially beneficial to fund the research. Today, only a very small handful of individuals and small organizations have attempted to discover the cause(s) and methods of disease contraction and transmittal of this mysterious disease. When I ask a half dozen scientists what Morgellons is, I get 6 different answers suggesting that no one really knows very much about this horrific disease.
Although every major US television network has reported on Morgellons, 99% of the medical profession and the general public have not heard of Morgellons.
This is exactly what happened 30 years ago when patients presented with symptoms also classified as ‘Delusional’ but is now well-known as AIDS/HIV. Those early victims endured the same neglect and abuse as Morgellons victims do today; denial, labels of being delusional and general neglect. Until enough people were infected, they were ignored by the mainstream medical community.
So what do Morgellons sufferers do to eliminate their suffering? They commit suicide as one of my friends did yesterday. We all have a responsibility to take care of each other. Until enough people suffer from Morgellons, it will remain “unprofitable” to conduct real scientific research into this horrible pandemic disease. Clearly, the Winners are the suppliers of medical goods and services and the Losers are the Morgellons sufferers.
Morgellons Attacks Teenagers Too;
Danny Shares His Story of How He Got His Life Back
Dear fellow Morgellons victims,
I'm writing on behalf of all the young people and the elderly with Morgellons who have been shunned, criticized, and outcasted by society thinking we suffers of this horrible disease are crazy. I personally knew absolutely nothing about this disease until I came home from school one day of September 2007 and noticed granule-like crystals on my hands. I also noticed clear fibers that appeared to be coming out of my hands as well. I went to the computer and typed in "black crystals on hands?" or something to that extent. I stumbled upon a few websites that had details of Morgellons symptoms and the blue, black, clear, and red fibers with granules coming out of hands, body, and or hair. I didn't automatically assume I have this disease after a couple months of thorough personal research I had whatever this bizarre disease was. Every single symptom I had matched everything I read. I had everything from the physical identification of Morgellons right down to all the mental and cognitive disorders of Morgellons; brain fog, I slept constantly, depression, insomnia at night (slept all through the days), lost a lot of weight, everything aliment you could imagine I had. But by far the worst symptoms was the anxiety that would come out of nowhere, it literally felt like I was even in my body at times.
It began to slowly but surely rule my life. I noticed the fibers everywhere in my home, friend’s homes, family member’s homes, these fibers were everywhere but I was one of the only that had symptoms to this extent. My friends and family had the fibers on there body and hair as well. My friends were the only ones who believed me about the fibers and knew I was sick. I tried to express to my mother and stepfather what was going on but surely my mother thought I was loosing my mind which I can completely understand because of how bizarre this disease sounds to the layman. Finally after convincing my mom I had this disease I stumbled upon a website called "NutraSilver". My mother personally thought I was crazy but my stepfather said "whether its in his head or not we can see if this helps"
So my stepdad bought a bottle of NutraSilver and it came with another for free. The first night I tried the NutraSilver I had to lie down in bed with my mother I trembled so bad. When I woke up the next morning I felt slightly better. I started to use the NutraSilver a couple times a day and just put some drops in my daily routine of drinking water. Everyday progressively got better, I started to forget completely about Morgellons and live my life. It ruled my life, I am an 18 year old male (at the time I was 17). I also stumbled across an amazing doctor and friend named Dr. Susan Kolb. I found her website when I was researching about Morgellons and even though I lived many states away and was very embarrassed I deciding to just call her and tell her what was going on. She talked to my parents, talked to my family and tried to express to them that this is a real disease. Still after all of that they still did not believe. She gave me great tips to get slowly but surely better as well. I slowly started being able to go to school more and focus more on my life. Everyday with NutraSilver and Dr. Kolb’s advice made everyday easier to get through. As last summer came along (2008), I was very confident I was Morgellons-free. I completely forgot about the disease and was able to live my life.
I moved into a new home, had a new life ahead of me and I felt like my life was finally back, unfortunately I ran out of NutraSilver around September of 2008 and was unable to purchase it again with the lack of my finances. I stopped using it all together. Around November or December my symptoms started coming back fully. I had brain fog again, depression, anxiety, fatigue; the fibers were coming out of my skin again. I was once again infected. They were around my new home and in my hair and body once again. I talked to Doctor Kolb at least once a month to keep her updated. With her help I personally discovered some things that helped in the mean time until I could get another credit card to purchase NutraSilver once more. My symptoms got so bad living at my new home I finally ended up moving back into my mother’s house where I first discovered I had Morgellons. I still felt horrible, I discovered something called Trilogy Cardio Essentials in my fridge that mom used to lower her blood pressure and things of that nature. It was recommended by someone who also used silver on a daily basis that ran a herbal store down the street from me. So I took a couple swigs every day unknowing the effect it would have on me. The next day I glanced at my hands after I was out of the shower. I noticed the fibers purging out like I had seen with NutraSilver; it was very scary.
I am still drinking it and it helps just as NutraSilver has. I have used many things to help with this horrific disease but I can honestly say NutraSilver, Dr. Bronners, and Trilogy Cardio Essentials has helped the most by far.
I’m sick of people ignoring this disease; even doctors are ignoring it. I know there are so many people that are struggling with this disease everyday, and I truly desire for them to live their life and again and take back what’s rightfully theirs.
My life is finally coming into view again, and I literally owe my life to a man named Russell at NutraSilver and a wonder Doctor by the name of Susan Kolb. I have never met a person so dedicated to seeing their patients or customers get better than Dr. Kolb
Without their help, guidance, and advice I'm not too sure how long I could have held out with all the depression and anxiety.
My final advice to any man, women or child with Morgellons is get NutraSilver, have a positive mind-set and lives your life again; I don’t want anyone to go through what I have been through with anxiety and depression.
Sincerely,
Daniel W.
I will list my personal protocol for Morgellons;
NutraSilver
Dr. Bronners Lemon Castile Soap ( you can use it for toothpaste, hair, body, lotion anything you can think of even laundry)
Acai berry
flaxseeds
Borax laundry detergent.
Air Filter
Trilogy Cardio Essentials.
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